Full Conference Agenda

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Sunday Monday Tuesday View All Download

Sunday, September 7, 2025

12:00 PM -
6:00 PM
1:00 PM -
3:00 PM
University Hall
Developing a Guide for cCMV Surveillance in U.S. Health Departments
Max Sidesinger
Jacinda Merrill
David Sugerman
Ashrita Rau
Kate Woodworth
Van Tong
Samantha Distler
Tatiana Lanzieri
Kelley Raines
Tory Kaye
Christina Sancken
Lois Park
Lexie Barber
Stephanie Browning McVicar
Jessica Redeker
Betia Zeng
[1:00 PM - 3:00 PM]
1:00 PM -
4:00 PM
Your Baby Has Screened Positively for Congenital CMV - But Looks Healthy! What Now?
Mark R. Schleiss
Erick Bothun
Sasha Strul
Jessica Novak
Charles Huskins
Emily Harrison
Hannah Herd
Maureen Cannon

[Thomas H. Swain]
1:30 PM -
4:30 PM
4:00 PM -
5:00 PM
5:00 PM -
7:00 PM
5:00 PM -
7:00 PM
'Poster Presentations'
[Johnson Great Room]

Monday, September 8, 2025

7:00 AM -
8:15 AM
7:00 AM -
4:00 PM
'Exhibit Hours'
[Johnson Great Room]
7:00 AM -
5:00 PM
8:00 AM -
8:30 AM
'Welcome and Minnesota Experience Becoming the First US State to Offer Universal CMV Screening'

Mark R. Schleiss, Jakub Tolar, Senator Karin Housley, Kirsten Coverstone

[Memorial Hall]
8:30 AM -
9:45 AM
'Minnesota Families Share Their Experience with Universal Newborn Screening for Congenital CMV'

Gail Demmler-Harrison, Mark R. Schleiss, Abby Stahowiak, Zak Hagstrom, Sarah Gorzek, Ashley Shearen, Brooke Harrison, Tami Hoffman

[Memorial Hall]
9:45 AM -
10:00 AM
10:00 AM -
11:15 AM
11:15 AM -
11:30 AM
11:30 AM -
12:00 PM
Why Didn't You Tell Me About cCMV? What CMV Parents Want Their Healthcare Providers to Know
Eliana Castillo
Maria Castrellon Pardo
Monica Surti
Medea Myers-Stewart
Marcia Bruce
Laija Beaulieu
Lisa Robinson

[Thomas H. Swain]
Update on cCMV Surveillance in Minnesota
Gina Liverseed
Tory Kaye
Jenna Hullerman Umar
Lexie Barber

[University Hall]
Prevalence of HCMV DNA and of infectious virus detected in saliva samples of young children in childcare centers
Lori Panther
John Diaz-Decaro
Karen Del'Olio
Elizabeth Orvek
Sandeep Basnet
John Holik
Anne Mirza
Olesea Cojohari
Stephen Lammi
Iliana Leony Lasso
Juli Gulpinar
Timothy Kowalik
Laura Gibson

[Memorial Hall]
11:30 AM -
12:30 PM
Ski-U-Mah
Optimizing Language Access for Children with Congenital CMV: The Role of American Sign Language
Kelsi Gagne
Leah Geer
Megan Pesch
[11:30 AM - 12:30 PM]
12:00 PM -
12:30 PM
cCMV and professional identity formation: reflections from medical students
Kinza Naeem
Shivam Nipanikar
Jonathan Lo
Ellen Peng
Serene Puri
Kathleen Muldoon

[Thomas H. Swain]
The parent experience: Facilitators and challenges to follow-up after identification with cCMV by universal newborn screening in Minnesota
Jenna Hullerman Umar
Jenna Soukup
Katherine Kass
Melissa Raspa
Sara M. Andrews
Emily Cheves
Lexie Barber
Bridget Walde
Gina Liverseed

[University Hall]
12:30 PM -
2:00 PM
2:00 PM -
2:30 PM
How Minnesota Moms Passed CMV Legislation
Steph Steidl

[Thomas H. Swain]
Universal newborn screening for congenital cytomegalovirus: A one-year pilot study in New York State
Denise Kay
Virginia Sack
Michele Caggana
Norma Tavakoli

[Memorial Hall]
2:00 PM -
3:00 PM
Ski-U-Mah
Understanding cost-effectiveness analysis and how it can inform CMV clinical care guidelines
Andrea Ciaranello
Elif Coskun
Aaron Wu
Malavika Prabhu
Anne Neilan
Caitlin Dugdale
John Giardina
Fatima Kakkar
Megan Nix
Megan Pesch
Clare Flanagan
[2:00 PM - 3:00 PM]
2:30 PM -
3:00 PM
Early Intervention Referral and Enrollment among Utah’s cCMV Cases
Jacinda Merrill
Stephanie Browning McVicar
Max Sidesinger

[University Hall]
PROACTIVE NYS: Preliminary Results and Lessons Learned from a Longitudinal Study of Children with Congenital CMV in New York State
Sunil Sood
Norma Tavakoli
Andrew Handel
Sharon Nachman
Christine Salvatore
Julia Piwoz
Minnie John
Sheila Nolan
Stephanie Ungar
Danielle Daniels
Michael Quinn
Mark Hicar
Gillian Taormina
Patricia DeLaMora
Leonard Weiner
Jennifer Nayak
Geoffrey Weinberg
Gitanjali Rebello
Jency Daniel
Saul Hymes

[Memorial Hall]
3:00 PM -
3:15 PM
3:15 PM -
3:45 PM
Ski-U-Mah
Expanded Targeted vs Universal- What our Experience Suggests
Albert Park
[3:15 PM - 3:45 PM]
University Hall
Spot the difference: Minnesota’s experience with spot-to-spot variability in the detection of Congenital Cytomegalovirus (cCMV) in dried blood spots using real-time PCR
Trenna Lapacinski-Ludens
Suzanne Skoog
[3:15 PM - 3:45 PM]
Memorial Hall
Retrospective Analysis of Archived Newborn Dried Blood Spots Tested for CMV DNA: Experience and Perspective of a CLIA-Approved Laboratory
Nelmary Hernandez-Alvarado
Mark R. Schleiss
Mark Blackstad
Claudia Fernandez-Alarcon
[3:15 PM - 3:45 PM]
3:45 PM -
4:00 PM
4:00 PM -
5:15 PM
'Rapid Fire Sessions'
[Memorial Hall]
5:30 PM -
7:30 PM

Tuesday, September 9, 2025

7:00 AM -
8:00 AM
Parent Breakfast Session [Thomas H. Swain]
7:00 AM -
1:00 PM
'Exhibit Hours'
[Johnson Great Room]
8:00 AM -
9:15 AM
9:15 AM -
9:30 AM
9:30 AM -
10:45 AM
10:45 AM -
11:00 AM
11:00 AM -
11:30 AM
Ski-U-Mah
“Creating financial security for a loved one with special needs”
HILARY HOFF
[11:00 AM - 11:30 AM]
Thomas H. Swain
Early Access to Spoken Languages using Cued Speech
Polly Earl
[11:00 AM - 11:30 AM]
University Hall
Frontal cortex white matter connections are altered and associated with neurodevelopment in infants with asymptomatic congenital cytomegalovirus infection
Rene Labounek
Amy Paulson
Bryon Mueller
Christophe Lenglet
Monica Bondy
Lauren Haisley
Meghan Swanson
Jed Elison
Erin Osterholm
Mark R. Schleiss
Igor Nestrasil
[11:00 AM - 11:30 AM]
Memorial Hall
Cytomegalovirus reinfections in seropositive pregnant women
Karen Fowler
Suresh Boppana
Shannon Ross
[11:00 AM - 11:30 AM]
11:30 AM -
12:00 PM
'Poster Presentations'
[Johnson Great Room]
11:30 AM -
1:00 PM
12:00 PM -
12:50 PM
1:00 PM -
1:30 PM
Wisconsin CMV Family Focus Survey
Pamela Hollar
Julie Kessel
Elizabeth Goetz

[Thomas H. Swain]
Lessons derived from >2 years congenital cytomegalovirus (cCMV) screening program: Support for widespread implementation of pooled-saliva testing for universal cCMV screening
Esther Oiknine-Djian
Noa Ofek Shlomai
Tal Sido
Oren Gordon
Colin Kunzweiler
Adva Gadoth
Laura Hendrix
John Diaz-Decaro
Yosefa Hefter
Moran Yassour
Smadar Eventov Friedman
Dana Wolf

[University Hall]
cCMV screening towards implementation: Parental and staff perspectives
Alanna N. Gillespie
Emma Webb
Jan Hodgson
Zeffie Poulakis
Gary Rance
Cheryl A. Jones
Valerie Sung

[Memorial Hall]
1:00 PM -
2:00 PM
Ski-U-Mah
Beyond the Blueprint: Virginia’s Steps Toward Expanding CMV Screening, Enhancing Surveillance, and Strengthening Family-Centered Support
Deepali Sanghani
Jana Pushkin
Lisa Eickel
[1:00 PM - 2:00 PM]
1:30 PM -
2:00 PM
Piloting a Novel Approach to Congenital CMV (cCMV) Screening using Dried Saliva Samples – Preliminary Results from a Quality Improvement Initiative in Ontario to Improve cCMV Diagnosis
Jessica Dunn
Kristin Kernohan
Melanie Lacaria
Ari Bitnun
Ed Yeh
Alan Mears
Danielle Durie
Soren Gantt
Zeinab Moazin
Jason Brophy
Pranesh Chakraborty
Emily Reuvers
Neal Sondheimer

[University Hall]
2:00 PM -
2:15 PM
2:15 PM -
2:45 PM
Evaluating the Impact of Universal Newborn cCMV Screening on Newborn Hearing Screening and Follow-up
Sara Lammert
Amanda Pavan
Melanie Wege
Kirsten Coverstone
Gina Liverseed
Lexie Barber
Annikka Strong
Darcia Dierking

[Thomas H. Swain]
The Australasian Congenital CMV Register (ACMVR): outcomes and antiviral therapy use
Valerie Sung
Emma Waight
Asha Bowen
Pamela Palasanthiran
Philip N Britton
Julia Clark
Sonia Dougherty
Jordann Davis
Rebecca Burrell
Alanna N. Gillespie
Preethi Chandrasekaran
Nicole Kerly
Hayley Smithers-Sheedy
Cheryl A. Jones

[University Hall]
2:45 PM -
3:15 PM
Voices of Experience: Parents' Insights on Congenital CMV
Lisa Eickel
Megan Becker

[Ski-U-Mah]
3:15 PM -
3:30 PM
3:30 PM -
5:00 PM
Hot Topics in cCMV [Memorial Hall]