CMV Conference

Room names are subject to change. Please check back as we get closer to the conference to verify room number.

Sunday Monday Tuesday View All

Sunday, September 7, 2025
12:00 AM - 6:00 PM	Registration Open
1:00 PM - 3:00 PM			University Hall *Developing a Guide for cCMV Surveillance in U.S. Health Departments* Max Sidesinger Jacinda Merrill David Sugerman Ashrita Rau Kate Woodworth Van Tong Samantha Distler Tatiana Lanzieri Kelley Raines Tory Kaye Christina Sancken Lois Park Lexie Barber Stephanie Browning McVicar Jessica Redeker Betia Zeng [1:00 PM - 3:00 PM]
1:00 PM - 4:00 PM	*IMPROVing Communication about cCMV – Empowering Families and Professionals in Difficult Conversation* Kathleen Muldoon [Ski-U-Mah]		*Your Baby Has Screened Positively for Congenital CMV - But Looks Healthy! What Now?* Mark R. Schleiss Erick Bothun Sasha Strul Jessica Novak Charles Huskins Emily Harrison Hannah Herd [Thomas H. Swain]
1:30 PM - 4:30 PM	Poster and Exhibitor Check-in/Setup
4:00 PM - 5:00 PM	*Exploring the Intersection of Congenital Cytomegalovirus and Vestibular Function* Karen Hendrick [Thomas H. Swain]		*Congenital CMV 101- Updates on What you Need to Know and Remember!* Gail Demmler-Harrison [University Hall]
5:00 PM - 7:00 PM	Welcome Reception
5:00 PM - 7:00 PM	'Poster Presentations' [Ski-U-Mah]
Monday, September 8, 2025
7:00 AM - 8:15 AM	Continental Breakfast and Visit Exhibits/Poster Presentations
7:00 AM - 5:00 PM	Registration Open
8:30 AM - 9:45 AM	'Minnesota Families Share Their Experience with Universal Newborn Screening for Congenital CMV' Gail Demmler-Harrison, Mark R. Schleiss [Ski-U-Mah]
9:45 AM - 10:00 AM	Break
10:00 AM - 11:15 AM	'Global Vaccines and Immunizations: The Science vs The antiscience' Peter Hotez [Ski-U-Mah]
11:15 AM - 11:30 AM	Break
11:30 AM - 12:30 PM	Ski-U-Mah *Optimizing Language Access for Children with Congenital CMV: The Role of American Sign Language* Kelsi Gagne Leah Geer Megan Pesch [11:30 AM - 12:30 PM]	Thomas H. Swain *Why Didn't You Tell Me About cCMV? What CMV Parents Want Their Healthcare Providers to Know* Eliana Castillo Maria Castrellon Pardo Monica Surti Medea Myers-Stewart Marcia Bruce Laija Beaulieu Lisa Robinson [11:30 AM - 12:30 PM] *cCMV and professional identity formation: reflections from medical students* Kinza Naeem Shivam Nipanikar Jonathan Lo Ellen Peng Serene Puri Kathleen Muldoon [11:30 AM - 12:30 PM]	University Hall *Update on cCMV Surveillance in Minnesota* Gina Liverseed Tory Kaye Jenna Hullerman Umar Lexie Barber [11:30 AM - 12:30 PM] *The parent experience: Facilitators and challenges to follow-up after identification with cCMV by universal newborn screening in Minnesota* Jenna Hullerman Umar Jenna Soukup Katherine Kass Melissa Raspa Sara M. Andrews Emily Cheves Lexie Barber Bridget Walde Gina Liverseed [11:30 AM - 12:30 PM]	Memorial Hall *Prevalence of HCMV DNA and of infectious virus detected in saliva samples of young children in childcare centers* Lori Panther John Diaz-Decaro Karen Del'Olio Elizabeth Orvek Sandeep Basnet John Holik Anne Mirza Olesea Cojohari Stephen Lammi Iliana Leony Lasso Juli Gulpinar Timothy Kowalik Laura Gibson [11:30 AM - 12:30 PM] *Quantitation of HCMV DNA and infectious virus in saliva samples of young children in childcare centers* Laura Gibson [11:30 AM - 12:30 PM]
12:30 PM - 2:00 PM	Lunch
2:00 PM - 3:00 PM	Ski-U-Mah *Understanding cost-effectiveness analysis and how it can inform CMV clinical care guidelines* Andrea Ciaranello Elif Coskun Aaron Wu Malavika Prabhu Anne Neilan Caitlin Dugdale John Giardina Fatima Kakkar Megan Nix Megan Pesch Clare Flanagan [2:00 PM - 3:00 PM]	Thomas H. Swain *How Minnesota Moms Passed CMV Legislation* Steph Steidl [2:00 PM - 3:00 PM] *The Colorado cCMV Work Group: An Advocacy Journey* Ted Maynard [2:00 PM - 3:00 PM]	University Hall *Beyond the Diagnosis: Opportunities for Early Interventionists to Support Children with cCMV and their Families* Jess Moen [2:00 PM - 3:00 PM] *Early Intervention Referral and Enrollment among Utah’s cCMV Cases* Jacinda Merrill Stephanie Browning McVicar Max Sidesinger [2:00 PM - 3:00 PM]	Memorial Hall *Universal newborn screening for congenital cytomegalovirus: A one-year pilot study in New York State* Denise Kay Virginia Sack Michele Caggana Norma Tavakoli [2:00 PM - 3:00 PM] *PROACTIVE NYS: Preliminary Results and Lessons Learned from a Longitudinal Study of Children with Congenital CMV in New York State* Sunil Sood Norma Tavakoli Andrew Handel Sharon Nachman Christine Salvatore Julia Piwoz Minnie John Sheila Nolan Stephanie Ungar Danielle Daniels Michael Quinn Mark Hicar Gillian Taormina Patricia DeLaMora Leonard Weiner Jennifer Nayak Geoffrey Weinberg Gitanjali Rebello Jency Daniel Saul Hymes [2:00 PM - 3:00 PM]
3:00 PM - 3:15 PM	Break
3:15 PM - 3:45 PM	Ski-U-Mah *Expanded Targeted vs Universal- What our Experience Suggests* Albert Park [3:15 PM - 3:45 PM]		University Hall *Spot the difference: Minnesota’s experience with spot-to-spot variability in the detection of Congenital Cytomegalovirus (cCMV) in dried blood spots using real time PCR* Trenna Lapacinski-Ludens Suzanne Skoog [3:15 PM - 3:45 PM]	Memorial Hall *Retrospective Analysis of Archived Newborn Dried Blood Spots Tested for CMV DNA: Experience and Perspective of a CLIA-Approved Laboratory* Nelmary Hernandez-Alvarado Mark R. Schleiss Mark Blackstad Claudia Fernandez-Alarcon [3:15 PM - 3:45 PM]
3:45 PM - 4:00 PM	Break
4:00 PM - 5:15 PM	'Rapid Fire Sessions' [Ski-U-Mah]
5:30 PM - 7:30 PM	Parent Social Hosted by Masonic Institute for the Developing Brain
6:30 PM - 7:30 PM	Social for all Conference Registrants Hosted by Masonic Institute for the Developing Brian
Tuesday, September 9, 2025
7:00 AM - 8:00 AM	Continental Breakfast and Visit Exhibits/Poster Presentations Parent Breakfast Session
8:00 AM - 9:15 AM	Plenary #3 [Ski-U-Mah]
9:15 AM - 9:30 AM	Break
9:30 AM - 10:45 AM	'Rapid Fire Sessions (Students/New Researchers)' [Ski-U-Mah]
10:45 AM - 11:00 AM	Break
11:00 AM - 11:30 AM	Ski-U-Mah *“Creating financial security for a loved one with special needs”* HILARY HOFF [11:00 AM - 11:30 AM]	Thomas H. Swain *Early Access to Spoken Languages using Cued Speech* Polly Earl [11:00 AM - 11:30 AM]	University Hall *Frontal cortex white matter connections are altered and associated with neurodevelopment in infants with asymptomatic congenital cytomegalovirus infection* Rene Labounek Amy Paulson Bryon Mueller Christophe Lenglet Monica Bondy Lauren Haisley Meghan Swanson Jed Elison Erin Osterholm Mark R. Schleiss Igor Nestrasil [11:00 AM - 11:30 AM]	Memorial Hall *Cytomegalovirus reinfections in seropositive pregnant women* Karen Fowler Suresh Boppana Shannon Ross [11:00 AM - 11:30 AM]
11:30 AM - 12:00 PM	'Poster Presentations' [Ski-U-Mah]
11:30 AM - 1:00 PM	Lunch
1:00 PM - 2:00 PM	Ski-U-Mah *Beyond the Blueprint: Virginia’s Steps Toward Expanding CMV Screening, Enhancing Surveillance, and Strengthening Family-Centered Support* Deepali Sanghani Jana Pushkin Lisa Eickel [1:00 PM - 2:00 PM]	Thomas H. Swain *Wisconsin CMV Family Focus Survey* Pamela Hollar [1:00 PM - 2:00 PM] *Navigating Your Role as a CMV Parent/Caregiver: Two Mothers' Unique Journeys in Advocating for Their Children* Laija Beaulieu Caroline Leroux [1:00 PM - 2:00 PM]	University Hall *Piloting a Novel Approach to Congenital CMV (cCMV) Screening using Dried Saliva Samples – Preliminary Results from a Quality Improvement Initiative in Ontario to Improve cCMV Diagnosis* Jessica Dunn Kristin Kernohan Melanie Lacaria Ari Bitnun Ed Yeh Alan Mears Danielle Durie Soren Gantt Zeinab Moazin Jason Brophy Pranesh Chakraborty Emily Reuvers Neal Sondheimer [1:00 PM - 2:00 PM] *Lessons derived from >2 years congenital cytomegalovirus (cCMV) screening program: Support for widespread implementation of pooled-saliva testing for universal cCMV screening* Esther Oiknine-Djian Noa Ofek Shlomai Tal Sido Oren Gordon Colin Kunzweiler Adva Gadoth Laura Hendrix John Diaz-Decaro Yosefa Hefter Moran Yassour Smadar Eventov Friedman Dana Wolf [1:00 PM - 2:00 PM]	Memorial Hall *cCMV screening towards implementation: Parental and staff perspectives* Alanna N. Gillespie Emma Webb Jan Hodgson Zeffie Poulakis Gary Rance Cheryl A. Jones Valerie Sung [1:00 PM - 2:00 PM] *Congenital CMV Knowledge, Practices and Beliefs Among Maternal Child Nursing* Michelle Zappas Ruth Foreman [1:00 PM - 2:00 PM]
2:00 PM - 2:15 PM	Break
2:15 PM - 3:15 PM	Ski-U-Mah *Beyond the Diagnosis: The Realities CMV Parents Face* Rob Tetrault [2:15 PM - 3:15 PM] *Voices of Experience: Parents' Insights on Congenital CMV* Lisa Eickel Megan Becker [2:15 PM - 3:15 PM]	Thomas H. Swain *Evaluating the Impact of Universal Newborn cCMV Screening on Newborn Hearing Screening and Follow-up* Sara Lammert Amanda Pavan Melanie Wege Kirsten Coverstone Gina Liverseed Lexie Barber Annikka Strong Darcia Dierking [2:15 PM - 3:15 PM] *Ophthalmic Findings in Newborns with cCMV since institution of Universal Newborn Screening in Minnesota* Sasha Strul Erick Bothun [2:15 PM - 3:15 PM]	University Hall *Management of infants with clinically inapparent congenital CMV identified through a universal newborn screening program in a Level I nursery* Shannon Ross Swetha Pinninti DeeAnne Jackson Karen Fowler [2:15 PM - 3:15 PM] *The Australasian Congenital CMV Register (ACMVR): outcomes and antiviral therapy use* Valerie Sung Emma Waight Asha Bowen Pamela Palasanthiran Philip N Britton Julia Clark Sonia Dougherty Jordann Davis Rebecca Burrell Alanna N. Gillespie Preethi Chandrasekaran Nicole Kerly Hayley Smithers-Sheedy Cheryl A. Jones [2:15 PM - 3:15 PM]	Memorial Hall *Making Noise for a Silent Virus: Public Outreach for Congenital CMV* Karmen Dippmann Haley Bice [2:15 PM - 3:15 PM] *Awareness and Prevention of Congenital Cytomegalovirus (cCMV): A Mixed-Methods Evaluation of Knowledge and Communication Strategies for People of Childbearing Age* Madison Berg Kinza Naeem Tanisha Trivedi Kathleen Muldoon [2:15 PM - 3:15 PM]
3:15 PM - 3:30 PM	Break
3:30 PM - 5:00 PM	Hot Topics in cCMV (Roundtable Discussions)

Full Conference Agenda

Sunday, September 7, 2025

Monday, September 8, 2025

Tuesday, September 9, 2025