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10/09/2023  |   11:15 AM - 11:40 AM   |  6613

What cCMV Families Want you to Know – Professionals, Family, and Friends

Abstract Summary

According to the Centers for Disease Control and Prevention (CDC), one out of every 200 babies are born with congenital Cytomegalovirus (CMV) and one in five babies born with CMV infections will have long-term health concerns. Long-term health concerns caused by cCMV often include major health conditions such as cerebral palsy, microcephaly, polymicrogyria, deafness, deaf blindness, and seizure disorders. Often these families deal with not one but multiple health concerns. Complex medical conditions result in multiple medical appointments with many different professionals. Both professional and nonprofessional relationships for cCMV families by nature are complex, with the need to juggle medical appointments and their day to day lives. This presentation will outline the complex relationships between cCMV families and their professionals, their families, and their friends. Participants will learn about the needs of cCMV families and about the best methods to address those specific needs. Participants will be provided a current survey of cCMV families answering the question: What do cCMV families want you to know?

Learning Objectives

  • Participants will be able to identify 5 specific needs of cCMV families.
  • Participants will be able to define 5 specific methods for addressing the needs of cCMV families.
  • Participants will be able to describe 5 ways to foster good relationships with cCMV families




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Sarah Streeval | Primary Presenter

Mom to a cCMV Angel. After losing her 3-year-old daughter, Bella Dawn, to congenital CMV, Sarah Streeval set out to change things for future CMV families in Kentucky. Sarah became a Community Chairperson for National CMV Foundation. She helped to spearhead a focus group in her state that worked for two years toward implementing CMV policy. In April of this year, Kentucky became the 5th state to pass legislation providing CMV education to expectant parents and targeted CMV testing for Kentucky newborns.


Financial - No relevant financial relationship exists.

Nonfinancial - No relevant nonfinancial relationship exists.


Financial - No relevant financial relationship exists.