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10/09/2023  |   10:00 AM - 10:25 AM   |  6613

Spreading CMV Awareness: How You Can Get Involved in Your Community

Abstract Summary

Congenital CMV (cCMV) continues to be an important and often overlooked cause of birth defects and childhood disabilities in the US, causing at least 4,000 children to be disabled each year. Awareness of cCMV remains low, with less than 9% of pregnant women having heard of cCMV. This presentation will focus on how parents and cCMV advocates can get involved through fundraising and awareness activities with the ultimate intent of eliminating cCMV. Grassroots efforts are an important way that advocates can spread cCMV awareness, and this presentation will give participants concrete ideas for starting CMV awareness activities in their own communities. This presentation will include a panel discussion focused on ways parents and advocates can get involved, and will be led by volunteers with the National CMV Foundation’s Community Alliance Program.

Learning Objectives

  • Describe 3 objectives of the Community Alliance Program at The National CMV Foundation
  • Describe 3 ways to spread CMV Awareness in your area
  • Describe 3 ways to start a CMV related event in your area






Amanda Devereaux | Primary Presenter

Amanda graduated with her Bachelor’s Degree in Nursing in 2007. She has worked in public health for 14 years, most recently focusing on maternal child health. In 2017 Amanda and her family successfully lobbied for CMV awareness and screening legislation in Iowa. Currently, she works as the Program Director for the National CMV Foundation. Amanda also serves as a voting member of the Congenital and Inherited Disorders Advisory Committee for the state of Iowa, and is Co-President of Iowa Hands & Voices.


Financial - Receives Consulting fee for Membership on advisory committee or review panels from Medscape.   Receives Other financial benefit for Employment from National CMV Foundation.  

Nonfinancial - Has a Personal (parent of a child with cCMV) relationship for Other volunteer activities.  


Financial - Receives support from Medscape National CMV Foundation for Amanda is a paid consultant for Medscape and is employed by the National CMV Foundation. .