Abstract Details
10/10/2023 | 11:45 AM - 12:10 PM | Flynn
Newborn Screening Longitudinal Follow-up for Congenital CMV in Minnesota
Abstract Summary
Congenital cytomegalovirus (cCMV) is the most common infectious cause of birth defects in the United States. One out of every 5 children born with cCMV will develop long-term health problems, such as hearing loss. To help improve the identification of children with cCMV, the condition was approved for addition to the Minnesota newborn screening (NBS) panel in January 2022. Universal screening for cCMV began in the state on February 6, 2023. Longitudinal follow-up is an important component of several state NBS programs, including Minnesota. Typically, once the initial diagnosis of a NBS condition has been confirmed, longitudinal follow-up activities begin. The goal of longitudinal follow-up is to use a systems-based approach to understand and promote health and well-being for children with conditions included in Minnesota NBS and their families. Longitudinal follow-up activities include connecting families to information, resources, and support; completing ongoing data collection, integration, and analysis for public health surveillance and program improvement; and building NBS system capacity to ensure equitable access and interventions. The Minnesota Department of Health (MDH) has developed and implemented longitudinal follow-up for children identified with cCMV. The purpose of this presentation is to share details about the components of the program and the activities specific to cCMV. Topics that will be covered in the session include the identification and development of parent and family educational materials and resources, stakeholder engagement, and community/systems capacity building. In addition, this presentation will contain information about MDH’s work in creating a public health surveillance system for following children identified with cCMV from birth throughout early childhood. Information to be discussed includes the selection of data elements, determining data sources, data collection strategies, and the development of data storage.
Learning Objectives
- Describe the goal and key components of longitudinal follow-up for newborn screening conditions in Minnesota.
- Discuss the planning and implementation of longitudinal follow-up for congenital CMV in Minnesota.
- Identify next steps for longitudinal care management and data collection activities.
Presentation
3440589_16092GinaLiverseed.pdf
Handouts
No handouts have been uploaded.
Presenters
Gina Liverseed | Primary Presenter, Co-Presenter, Co-Author
gina.liverseed@state.mn.us;
Gina Liverseed is the CMV Nurse Specialist in the Children and Youth with Special Health Needs section at the Minnesota Department of Health. In this role, she is responsible for coordinating the longitudinal follow-up of children identified with congenital CMV and providing education about CMV to public and provider audiences. She holds Bachelor and Master of Nursing degrees from the University Minnesota and a Doctor of Nursing Practice degree from the University of North Dakota. Gina has over 20 years of experience working as a maternal-child health nurse and a Women’s Health Nurse Practitioner. She has a special interest in perinatal infectious disease.
ASHA DISCLOSURE
Financial - No relevant financial relationship exists.
Nonfinancial - No relevant nonfinancial relationship exists.
AAA DISCLOSURE
Financial - No relevant financial relationship exists.
Lexie Barber | Co-Presenter, Author, Co-Author
lexie.barber@state.mn.us;
Lexie Barber is an epidemiologist in the Longitudinal Follow-up unit at the Minnesota Department of Health (MDH) focusing on congenital CMV and heritable conditions. Lexie joined the team in December 2022. Previously, she worked in the infectious disease divisions at MDH and the North Dakota Department of Health working mainly in vaccine preventable diseases. Lexie received her Bachelor of Science in microbiology at North Dakota State University and her Master of Public Health in environmental health from the University of Minnesota.
ASHA DISCLOSURE
Financial - No relevant financial relationship exists.
Nonfinancial - No relevant nonfinancial relationship exists.
AAA DISCLOSURE
Financial - No relevant financial relationship exists.