CMV Conference

Room names are subject to change. Please check back as we get closer to the conference to verify room number.

Sunday Monday Tuesday View All

Sunday, October 8, 2023
10:00 AM - 6:00 PM	Registration Open [2nd Floor by Elevators]
11:00 AM - 12:00 PM	*CMV Leadership Work Group* Khaliah Fleming [6th Floor 6613]
12:30 PM - 2:00 PM	*FREE WORKSHOP: Seizure Recognition and First Aid Certification* LaQueisa Haynes-Smith Thometta Cozart Cheryl Houston Margo Thurman [Courtroom]
1:00 PM - 4:00 PM	*Come Along on Minnesota’s Adventure through Congenital CMV Candyland* Heather Brand Trenna Lapacinski-Ludens Sondra Rosendahl Kirsten Coverstone Gina Liverseed [6th Floor 6619]
1:30 PM - 4:30 PM	Poster and Exhibitor Check-in/Set-up
2:00 PM - 3:00 PM	*Hearing Loss in Children with Congenital Cytomegalovirus Infection: Natural History and Antiviral Treatment* Tatiana Lanzieri [6th Floor 6613]	*Basic Biology of CMV: Application to Diagnosis, Therapy, and Prevention* Mark R. Schleiss [Flynn]
3:00 PM - 4:30 PM	*CMV 101 The Basics and the Updates about Congenital CMV for 2023* Gail Demmler-Harrison [6th Floor 6619]
5:00 PM - 7:00 PM	Exhibitor Hours
5:00 PM - 7:00 PM	Welcome Reception [6th Floor - Terrace and Pre-Function]
Monday, October 9, 2023
7:00 AM - 8:00 AM	Continental Breakfast and Visit Exhibits/Posters [6th Floor - Pre-Function]
7:00 AM - 5:00 PM	Registration Open [2nd Floor by Elevators]
7:00 AM - 5:00 PM	Exhibitor Hours
8:30 AM - 9:45 AM	'Advancing CMV Education and Testing: Reflections on a Decade of Progress' Stephanie Browning McVicar [6th Floor Courtroom]
9:45 AM - 10:00 AM	Break
10:00 AM - 11:00 AM	Courtroom *Hearing and Vestibular Monitoring Protocol for Infants and Children with Congenital Cytomegalovirus* Karen Hendrick Elissa Jodon [10:00 AM - 11:00 AM]	Flynn *A Path to Congenital CMV Policy Change* Sarah Streeval [10:00 AM - 11:00 AM]	6613 *Spreading CMV Awareness: How You Can Get Involved in Your Community* Amanda Devereaux [10:00 AM - 10:25 AM] *"You Don't Know, What You Don't Know" - The Epic CMV Fail Parents Journey in Finding Answers When Doctors Failed to Diagnose Congenital CMV at Birth* Pamela Jinsky [10:30 AM - 10:55 AM]	6619 *Expanded CMV newborn screening: adding intrauterine growth restriction diagnosis to targeted CMV screening in newborns* Suresh Boppana Shannon Ross Karen B. Fowler [10:00 AM - 10:25 AM] *Cranial Ultrasound Comparisons in Asymptomatic and Symptomatic Infants Identified in a Universal Congenital Cytomegalovirus Screening Study in Minnesota* Rebecca Kruc Nelmary Hernandez-Alvarado Mark R. Schleiss Erin Osterholm [10:30 AM - 10:55 AM]
11:00 AM - 11:15 AM	Break
11:15 AM - 12:15 PM	Courtroom *Autism spectrum disorder and Congenital CMV: More than just a coincidence* Megan Pesch Samantha Nikirk [11:15 AM - 12:15 PM]	Flynn *Florida's Early Experience Implementing Targeted cCMV Screening* Kimberly Porter Miranda Nerland Natasha Rich [11:15 AM - 12:15 PM]	6613 *What cCMV Families Want you to Know – Professionals, Family, and Friends* Sarah Streeval [11:15 AM - 11:40 AM] *Addressing the Gaps – Knowledge among Families Affected by congenital CMV* Seth Dobson Kathleen Muldoon [11:45 AM - 12:10 PM]	6619 *EHDI and Universal cCMV Screening* Kirsten Coverstone Annikka Strong Darcia Dierking Amanda Pavan Melanie Wege [11:15 AM - 11:40 AM] *Trajectory of Hearing Loss in Children with Congenital Cytomegalovirus* Sharon Cushing [11:45 AM - 12:10 PM]
12:15 PM - 1:15 PM	Lunch (On-site) [6th Floor 6623]
12:30 PM - 1:10 PM	Poster Presentations
1:15 PM - 2:15 PM	CMV Education, Screening, and Diagnosis in Pregnancy: Gaining the Attention of Pregnancy Providers Natali Aziz [Courtroom]
2:15 PM - 2:30 PM	Break
2:30 PM - 3:30 PM	Courtroom *Advocacy in Canada* Rob Tetrault [2:30 PM - 3:30 PM]	Flynn *Raising Awareness of cCMV in Arizona: Stop CMV AZ / Alto CMV AZ* Alissa Nickerson Kathleen Muldoon Wendy Steuerwald Nathan Page Deborah Flynn Lylis Olsen Melissa Selbst Seth Dobson Kathleen Muldoon [2:30 PM - 2:55 PM] *Promoting Awareness of Cytomegalovirus: One Message May Not Fit All* Gina Liverseed Bridget Walde [3:00 PM - 3:25 PM]	6613 *Establishing standardized case definitions for congenital cytomegalovirus (cCMV) infection and disease in the United States* Max Sidesinger Jacinda Merrill David Sugerman Ashrita Rau Kristen Nichols Heitman Stephanie Browning McVicar Tatiana Lanzieri Jessica Leung Kelley Raines [2:30 PM - 2:55 PM] *Uncovering the iceberg: describing the epidemiology of congenital cytomegalovirus through universal newborn screening* Sondra Rosendahl Lexie Barber Jenna Hullerman Umar Tory Kaye [3:00 PM - 3:25 PM]	6619 *Advancing Clinical Practice Guidelines for cCMV Prevention and Care: A Targeted Literature Review* Stephanie Kalb Colin Kunzweiler John Diaz-Decaro Kevork Ourfalian Harout Tossonian [2:30 PM - 2:55 PM] *Neurodevelopmental outcomes in children with congenital CMV: Results of a systematic review* Clare Lauer Jason Weinberg Megan Pesch [3:00 PM - 3:25 PM]
3:00 PM - 3:45 PM	Break
3:45 PM - 5:00 PM	Rapid Fire Sessions [6th Floor Courtroom]
5:15 PM - 6:30 PM	Parent Appetizer/Dessert Social [DoubleTree Ballroom A]
Tuesday, October 10, 2023
7:00 AM - 2:30 PM	Exhibitor Hours
7:15 AM - 8:25 AM	Parent Breakfast Session: Breakfast with the National CMV Scientific Advisory Committee [6th Floor 6613]
7:15 AM - 8:30 AM	Continental Breakfast and Visit Exhibits/Posters [6th Floor - Pre-Function]
8:30 AM - 9:30 AM	Guilt, Grief, Anger & Ambiguity: Supporting Families Through the Emotions of a CMV diagnosis Stephanie Lucas [6th Floor Courtroom]
9:30 AM - 9:45 AM	Break
9:45 AM - 11:00 AM	Regional Stakeholder Meeting
11:00 AM - 11:15 AM	Break
11:15 AM - 12:15 PM	Courtroom *The Commonwealth of Virginia’s Hearing Targeted cCMV Screening Program, Initial Experience and Lessons Learned* Stephanie Moody Antonio Rebecca Levorson Deepali Sanghani [11:15 AM - 12:15 PM]	Flynn *The stories behind the spots: successes and struggles of universal newborn screening for congenital cytomegalovirus* Gina Liverseed Tory Kaye Lexie Barber Jenna Hullerman Umar Jenna Soukup McKayla Gourneau Annikka Strong Kirsten Coverstone Sondra Rosendahl [11:15 AM - 11:40 AM] *Newborn Screening Longitudinal Follow-up for Congenital CMV in Minnesota* Gina Liverseed Lexie Barber [11:45 AM - 12:10 PM]	6613 *Clinical Sensitivity of Saliva and Dried Blood Spot PCR and Infant Outcomes from a Congenital CMV Newborn Screening Study: 2016-2022* Mark R. Schleiss Erin Osterholm Rebecca Kruc Nelmary Hernandez-Alvarado Mark Blackstad Hannah Herd Sondra Rosendahl Kirsten Coverstone Sheila Dollard Tatiana Lanzieri [11:15 AM - 11:40 AM] *Timing of cCMV diagnosis - Retrospective study in Washington State* Mallory Baker Ann Melvin [11:45 AM - 12:10 PM]	6619 *Creation of the CMV Transmission and Immune Tracking (TransmIT) Study Based on Collaboration and Community Engagement* Lori Panther Lauren Howe John Diaz-Decaro Karen Del'Olio Elizabeth Orvek Kelsey Woods Syed Naeem Cynthia Callaghan Annie Geiger Susan Druker Bruce Barton Thejas Suvarna Emma Harman Kelley Bridges Summer Schrader Madeleine Hayden Sandeep Basnet Timothy Kowalik Laura Gibson [11:15 AM - 11:40 AM] *Intrafamilial CMV Transmission in the First Two Years Postpartum* Elisabeth McClymont Emily R Begnel Ednah Ojee Judith Adhiambo Brenda Wandika Bhavna H Chohan Preston Owiti Dara A Lehman Dalton Wamalwa John Kinuthia Jennifer Slyker Soren Gantt [11:45 AM - 12:10 PM]
12:15 PM - 1:30 PM	Lunch (On-site) [6th Floor 6623]
12:30 PM - 1:25 PM	Poster Presentation Session from Rapid Fire Presentations [6th Floor Hallway]
1:30 PM - 2:30 PM	Courtroom *Finding Your Village: A Family's Guide to Building Your Support Network* Lisa Eickel [1:30 PM - 2:30 PM]	Flynn *An Analysis of cCMV Cases Identified in Utah, 2013-2023* Max Sidesinger Jacinda Merrill Stephanie Browning McVicar [1:30 PM - 2:30 PM]	6613 *The impact of education on women’s awareness of and behaviors surrounding congenital cytomegalovirus* Taylor Redding Jessica Sharma Shaistah Din Abel Chavez Luke Hansen Marissa Diener Albert Park [1:30 PM - 1:55 PM] *What are the Prenatal Implications of Congenital Cytomegalovirus for the Provider and Patient?* Marissa Diener Albert Park Nathan Blue [2:00 PM - 2:25 PM]	6619 *Autism Spectrum Disorder Diagnoses among Insured US Children with Congenital Cytomegalovirus Diagnoses* Sarah Tinker Charles Rose Melissa Danielson Scott Grosse Marshalyn Yeargin-Allsop Tatiana Lanzieri Jessica Leung Megan Pesch [1:30 PM - 1:55 PM] *Targeted therapies for behavioral disorders among children with congenital CMV infection* Alejandra Sandoval Carmona Soren Gantt Jean-François Chicoine Sandra Caron Fatima Kakkar Christian Renaud [2:00 PM - 2:25 PM]
2:30 PM - 2:45 PM	Break
2:30 PM - 4:30 PM	Exhibitor Dismantle
2:45 PM - 3:45 PM	Courtroom *Congenital cytomegalovirus (cCMV) surveillance: a recently added threat in the Surveillance for Emerging Threats to Pregnant People and Infants Network (SET-NET)* Tatiana Lanzieri Jessica Leung Sondra Rosendahl David Sugerman Kate woodworth Van Tong Kristen Nichols Heitman Kelley Raines Tory Kaye Ashrita Rau [2:45 PM - 3:45 PM]	Flynn *It Won't Happen to Me and Other Lies I Told Myself* Patricia Cutshall-Bailey [2:45 PM - 3:45 PM]	6613 *Tips for Developing Your States CMV Legislative Priorities to Address Screenings, Education and Public Awareness* Melissa Stone Mengistu Julie Verhoff [2:45 PM - 3:10 PM] *Factors influencing expansion of targeted cCMV screening* Robert Fifer [3:15 PM - 3:40 PM]	6619 *An Overview of the CSTE cCMV Position Statement's Impact on Utah's Case Classification* Jacinda Merrill Max Sidesinger Stephanie Browning McVicar [2:45 PM - 3:10 PM] *A Pilot Study in NYS to Perform Newborn Screening for Congenital Cytomegalovirus* Norma Tavakoli [3:15 PM - 3:40 PM]
3:45 PM - 4:00 PM	Break
4:00 PM - 5:00 PM	Writing Remedies for Sorrow and what I talk about when I talk about CMV Megan Nix [6th Floor Courtroom]

Full Conference Agenda

Sunday, October 8, 2023

Monday, October 9, 2023

Tuesday, October 10, 2023