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What we learned from our 2022 conference: Congenital Cytomegalovirus (cCMV): What Health Care Providers Need to Know

Abstract Summary

The Stop CMV AZ Interdisciplinary collaborative presented Congenital Cytomegalovirus (cCMV): What Health Care Providers Need to Know, a virtual conference on June 11, 2022. The goal of the conference was to present the latest research on diagnosis and treatment, raise awareness, delineate prevention efforts, provide information about early intervention options, and disseminate family support resources in an effort to reduce the number of babies infected with cCMV, and to connect families affected by CMV with the resources they need to provide best outcomes for their children. Seventy-one people registered for the conference including 23 students, 22 professionals, 21 parents/community members, and 5 fellows/residents. Conference topics included an overview of CMV, prenatal diagnosis and treatment of CMV, CMV and hearing loss, CMV and hearing loss outcomes, CMV and the medical home, dual sensory loss and early intervention, and a living library/family panel. The living library consisted of five parents of children with cCMV sharing their stories to conference participants. Conference attendees reported that this was one of the most impactful sections of the conference and led to many questions from attendees. All conference evaluation forms rated the meeting as excellent. The comments were insightful and gave collaborative members insights on where to focus future education and awareness efforts. Comment themes included the need for additional cCMV education materials, sharing information with families, benefits and use of American Sign Language, and use of cCMV medical information. Funding provided by Arizona Community Foundation (to MS), Midwestern University (to KMM) Learning Objectives: Participants will be able to: 1. Discuss educational components that attract a variety of participants 2. Explain impact of a living library 3. Use participant’s comments to plan next education events

Learning Objectives

  • 1. Discuss educational components that attract a variety of participants
  • 2. Explain impact of a living library
  • 3. Use participant’s comments to plan next education events

Presentation

3440589_16077KathleenMuldoon.pdf
3440589_16077WendySteuerwald.pdf

Handouts

3440589_16077KathleenMuldoon.pdf
3440589_16077KathleenMuldoon.pptx

Presenters


Wendy Steuerwald | Primary Presenter, Author

wsteuerwald@phoenixchildrens.com;
Wendy Steuerwald is the Director of Audiology at Phoenix Children’s. She works with audiologists to create an environment where exceptional patient care is provided. This includes the creation of clinical guidelines, process improvement initiatives, program expansion, addition of new locations, and monitoring of key performance initiatives. Professional leadership includes committee responsibilities within the American Academy of Audiology, Universal Newborn Hearing Screening Committee for the state of Ohio, and AzEHDI stakeholder. Wendy is a co author of the American Academy of Audiology cCMV position statement. Wendy enjoys audiology as it gives her the opportunity to improve the lives of others by direct patient care, and by working on system level changes such as cCMV awareness and screening initiatives across the country.

ASHA DISCLOSURE

Financial - No relevant financial relationship exists.

Nonfinancial - No relevant nonfinancial relationship exists.

AAA DISCLOSURE

Financial - No relevant financial relationship exists.


Kathleen Muldoon | Author, Co-Author

kmuldo@midwestern.edu;
Kathleen M. Muldoon, Ph.D. is an anthropologist and Professor of Anatomy at Midwestern University, Glendale. Through her experiences with disability, she became interested in science communication, and the effectiveness of professional education on public health knowledge, empathy, and humanity in medicine. She is the proud parent of three children: her middle child has multiple disabilities due to congenital cytomegalovirus (cCMV).

ASHA DISCLOSURE

Financial - No relevant financial relationship exists.

Nonfinancial - No relevant nonfinancial relationship exists.

AAA DISCLOSURE

Financial - No relevant financial relationship exists.


Alissa Nickerson | Co-Presenter, Co-Author

anickerson@phoenixchildrens.com;
Alissa Nickerson, AuD, CCC-A, is a clinical audiologist at Phoenix Children’s specializing in the diagnosis and management of childhood hearing loss. She has special interest in cCMV and amplification for pediatric patients. Alissa has publications in the areas of post-baccalaureate audiology training and amplification profiles of pediatric cochlear implant users.

ASHA DISCLOSURE

Financial - No relevant financial relationship exists.

Nonfinancial - No relevant nonfinancial relationship exists.

AAA DISCLOSURE

Financial - No relevant financial relationship exists.


Melissa Selbst | Co-Author

melissa@earfoundationaz.com ;
Ms. Selbst is the Executive Director of The Ear Foundation of Arizona (EFAz). She has more than 30 years of experience working in public health in Arizona, with a focus on family, women, and children’s health services, promoting public health agendas both programmatically and through policy. She has coordinated legislative efforts for education, advocacy, and collaboration between governmental and non-governmental organizations including parents, physicians, and others.

ASHA DISCLOSURE

Financial - No relevant financial relationship exists.

Nonfinancial - No relevant nonfinancial relationship exists.

AAA DISCLOSURE

Financial - No relevant financial relationship exists.


Deborah Flynn | Co-Author

dflynn@phoenixchildrens.com;
Deborah Flynn is the Audiology Lead for Cochlear Implants at Phoenix Children's Hospital. She received her Bachelors and Master's Degree from the University of Arizona and her clinical doctorate in audiology from AT Still-Arizona School of Health Sciences. Prior to joining PCH, she trained at Children's Hospital, Boston and worked at the Hearing Institute for Adults and Children in San Jose, California. She has extensive experience in identification, intervention, and management of infants, children, and teens with hearing loss. Her involvement in the Audiology Team includes cochlear implants, hearing aids, pediatric audiological evaluations, ototoxic monitoring, evoked potentials, assistive listening technology, and newborn hearing screenings. Her clinic interests include a multidisciplinary team approach for children with cochlear implants and hearing aids. She presents on various audiological topics throughout Arizona. She has been an adjunct professor at AT Still University, Arizona School of Health Sciences and enjoys teaching students

ASHA DISCLOSURE

Financial - Receives Consulting fee for Consulting from Advanced Bionics.  

Nonfinancial - No relevant nonfinancial relationship exists.

AAA DISCLOSURE

Financial - Receives support from Advance Bionics for Service Fees only.  


Nathan Page | Co-Author

npage@phoenixchildrens.com;
Dr. Page graduated from Brigham Young University in Linguistics before continuing on to medical school at Washington University School of Medicine in St. Louis. Dr. Page completed otolaryngology – head and neck surgery residency at Washington University School of Medicine/Barnes-Jewish Hospital then furthered his training through a pediatric otolaryngology fellowship at Rady Children’s Hospital. After several years in private practice in Arizona, he started the Division of Otolaryngology at Phoenix Children’s Hospital in 2017. He is the director of the cochlear implant team at Phoenix Children’s Hospital and is involved in medical staff leadership and many aspects of multidisciplinary care. In 2021, he became the EHDI Chapter Champion for the Arizona chapter of the AAP. He is a founding member of StopCMVAZ and is actively involved in efforts to improve education and understanding of CMV in Arizona.

ASHA DISCLOSURE

Financial - No relevant financial relationship exists.

Nonfinancial - No relevant nonfinancial relationship exists.

AAA DISCLOSURE

Financial - No relevant financial relationship exists.