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9/08/2025  |   11:30 AM - 12:30 PM   |  Breakout 1   |  University Hall

Update on cCMV Surveillance in Minnesota

Abstract Summary

Background: The Minnesota Department of Health (MDH) began statewide public health surveillance for congenital cytomegalovirus (cCMV) in February 2023, funded in part by the Centers for Disease Control and Prevention’s Surveillance for Emerging Threats to Mothers and Babies Network (SET-NET). Congenital CMV cases are identified through Minnesota’s newborn screening program, which began universal screening for cCMV on February 6, 2023, as well as through health care providers, laboratories, and other reporting sources, as cCMV is a reportable condition in Minnesota. This presentation will discuss Minnesota cCMV surveillance data and initial longitudinal outcomes. Methods: Minnesota infants born on or after Feb. 6, 2023, who meet the Counsel for State and Territorial Epidemiologists (CSTE) case definition are included in Minnesota statewide surveillance. Data on birth outcomes, well-child visits, and ongoing ophthalmology and audiology evaluations were abstracted from medical records. Demographics were obtained through vital records data. Results: 332 cases reported to MDH through Dec. 31, 2024 met the CSTE case definition. Deaths have been reported in two children identified with cCMV. Hearing loss with a sensorineural component has been identified in 23 children with cCMV, five of whom passed their initial hearing screen. 18 infants with cCMV had microcephaly at birth. During this presentation, we will also explore additional signs and symptoms, audiology monitoring evaluations, outcomes at well-child visits, referrals to early intervention and specialists, ophthalmology evaluations, and demographic data. Conclusions: MDH will continue to conduct longitudinal surveillance as infants with cCMV age to learn more about the effects of cCMV in childhood. Next steps will include reviewing maternal charts for factors, such as occupation, that may increase risk of CMV, and to learn if cCMV was discussed during pregnancy.

Learning Objectives

  • Describe cCMV data collection processes of MDH
  • Describe demographic data of cCMV cases in Minnesota
  • Recall number of cases of cCMV in Minnesota, including those with hearing loss

Presentation

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Presenters


Tory Kaye | Co-Author

tory.kaye@state.mn.us;
Tory is an epidemiologist in the Newborn Screening Program at the Minnesota Department of Health. She leads epidemiology for the blood spot program, analyzing the program’s pre-analytical, analytical, and post-analytical dried blood spot data to improve the lives of babies in Minnesota. She received her Bachelors of Science degree in Animal Science and her Masters of Public Health degree both from the University of Minnesota. In her spare time, Tory enjoys camping and anything else involving the outdoors, as well as spending time with her family and friends including cat, 4 turtles,2 goats, and chickens.

ASHA DISCLOSURE

Financial -

Nonfinancial -

AAA DISCLOSURE

Financial - No relevant financial relationship exists.


Gina Liverseed | Co-Author

gina.liverseed@state.mn.us;
Gina Liverseed is the CMV Nurse Specialist in the Children and Youth with Special Health Needs section at the Minnesota Department of Health. In this role, she is responsible for coordinating the longitudinal follow-up of children identified with congenital CMV and providing education about CMV to public and provider audiences. She holds Bachelor and Master of Nursing degrees from the University Minnesota and a Doctor of Nursing Practice degree from the University of North Dakota. Gina has over 20 years of experience working as a maternal-child health nurse and a Women’s Health Nurse Practitioner. She has a special interest in perinatal infectious disease.

ASHA DISCLOSURE

Financial - No relevant financial relationship exists.

Nonfinancial - No relevant nonfinancial relationship exists.

AAA DISCLOSURE

Financial - No relevant financial relationship exists.


Jenna Hullerman Umar | Co-Author

jenna.hullerman.umar@state.mn.us;
Jenna Hullerman Umar leads short term follow-up for several conditions screened using blood spot testing, including cCMV, at the Minnesota Department of Health. She serves as the main point of contacts for specialists throughout the state who serve families completing initial follow-up testing and diagnosis after an abnormal newborn screening result. Her educational background includes a Bachelor of Arts degree in Biological/Archaeological Anthropology, and a Master of Public Health in Maternal and Child Health Epidemiology. Outside of work, Jenna enjoys reading fantasy novels, nerding out with her family on home science projects, dancing, and learning about other cultures.

ASHA DISCLOSURE

Financial -

Nonfinancial -

AAA DISCLOSURE

Financial - No relevant financial relationship exists.


Lexie Barber | POC-Point of Contact, Primary Presenter, Author

lexie.barber@state.mn.us;
Lexie Barber is an epidemiologist in the Longitudinal Follow-up unit at the Minnesota Department of Health (MDH) focusing on congenital CMV and heritable conditions. Lexie joined the team in December 2022. Previously, she worked in the infectious disease divisions at MDH and the North Dakota Department of Health working mainly in vaccine preventable diseases. Lexie received her Bachelor of Science in microbiology at North Dakota State University and her Master of Public Health in environmental health from the University of Minnesota.

ASHA DISCLOSURE

Financial - No relevant financial relationship exists.

Nonfinancial - No relevant nonfinancial relationship exists.

AAA DISCLOSURE

Financial - No relevant financial relationship exists.