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9/08/2025  |   2:00 PM - 3:00 PM   |  Breakout 2   |  University Hall

Early Intervention Referral and Enrollment among Utah’s cCMV Cases

Abstract Summary

The Utah Early Hearing Detection and Intervention (EHDI) Program has collected data on congenital CMV (cCMV) cases since 2013 and is tracking the long-term outcomes of these cases. Since cCMV can lead to disabilities, such as hearing loss and cerebral palsy, as well as developmental delays, the Utah EHDI program partnered with the state’s Part C of IDEA early intervention (EI) oversight agency, Baby Watch Early Intervention Program, to make cCMV a qualifying diagnosis for EI services shortly after Utah’s cCMV education and testing program began. Through data linkages and working relationships with other Utah state programs and providers, the Utah EHDI team has been able to collect EI data on cCMV cases. Analysis of this data provided insight into not only the percent of cases referred to EI (70.76% of cCMV cases were referred), but also those that actually enrolled (79.34% of referred cases enrolled in services). These percentages were then compared among each cCMV case classification category (confirmed disease, confirmed infection, and probable disease). Furthermore, analysis also provided information on the reasons for which cCMV cases were referred (for cCMV and/or other diagnoses), how often cCMV was used as the reason for referral to EI, and more. These findings can provide a comparison on whether or not certain cCMV cases (i.e. disease vs. infection) are being referred to EI at the same rate, as well as how often cCMV is being used as a reason for referral. Lastly, these findings can inform providers and other jurisdictions with how often Utah’s cases are benefiting from EI services.

Learning Objectives

  • Describe referral and enrollment statistics for early intervention services among Utah’s cCMV cases
  • Explain the breakdown of early intervention enrollment and referrals among each cCMV case classification category
  • List the primary indications for referral among cCMV cases, as well as reasons cases did not enroll in early intervention services

Presentation

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Presenters


Jacinda Merrill | Primary Presenter, Co-Author

jamerrill@utah.gov;
Jacinda Merrill, MPH, CHES, is the CMV epidemiologist for the Utah Early Hearing Detection and Intervention Program. She abstracts data from electronic health records of children who have tested positive for CMV within the first year of age. Jacinda enters health data, including CMV test results, newborn hearing screening results, and other relevant data on cCMV cases into Utah’s CMV registry. She performs analysis on confirmed, probable, and suspect cCMV cases. Jacinda’s position is part of a pilot surveillance project for cCMV in collaboration with the CDC. She received her BS in Public Health with an emphasis in Health Promotion, along with a Masters in Public Health from Brigham Young University. Jacinda’s career interests include using best practices in data analysis and communicating that data in audience-appropriate ways to positively impact public health.

ASHA DISCLOSURE

Financial - No relevant financial relationship exists.

Nonfinancial - No relevant nonfinancial relationship exists.

AAA DISCLOSURE

Financial - No relevant financial relationship exists.


Max Sidesinger | Co-Author

msidesinger@utah.gov;
Max Sidesinger, MPH, is the CMV data coordinator and an epidemiologist for Utah’s Early Hearing Detection and Intervention Program. He collects information on every CMV test completed on a child under 1 year of age in Utah, per the state Communicable Disease Rule, and works with providers and families to ensure CMV testing for children who fall under Utah's CMV Public Education and Testing Mandate. Max provides analyses for both CMV and EHDI related data.  He has collaborated with researchers at the University of Utah on multiple newborn hearing-related projects, with the CDC on a pilot surveillance project for cCMV, and with the CSTE on a position statement for standardized cCMV surveillance. Max received his BS in biology and Masters in public health from the University of Utah. His career interest is in using epidemiological methods to address public health needs.

ASHA DISCLOSURE

Financial - No relevant financial relationship exists.

Nonfinancial - No relevant nonfinancial relationship exists.

AAA DISCLOSURE

Financial - No relevant financial relationship exists.


Stephanie Browning McVicar | Co-Author

smcvicar@utah.gov;
Dr. Stephanie Browning McVicar is the Director of the Early Hearing Detection and Intervention Program, the Children’s Hearing Aid Program, and the Cytomegalovirus (CMV) Public Education & Testing Program at the Utah Department of Health & Human Services. Dr. McVicar is an audiologist with expertise in infants and pediatrics, an advocate for CMV testing in newborns, and passionate about the prevention of congenital CMV infection. She is originally from Western New York and has extensive experience and knowledge in Audiology and the management of health care programs.

ASHA DISCLOSURE

Financial - No relevant financial relationship exists.

Nonfinancial - No relevant nonfinancial relationship exists.

AAA DISCLOSURE

Financial - No relevant financial relationship exists.