Abstract Details
8/22/2022 | 4:05 PM - 4:30 PM | Confederation II/III
From Research Subjects to Research Partners: Shifting the CMV Research and Advocacy Paradigm
Patient-Oriented Research (POR) involves patients and caregivers participating as partners throughout the research process. Traditionally patients are research subjects or advocates for change. POR actively and purposely involves patients in all stages of research, aligning research portfolios with patient priorities to enhance recruitment, data collection, analyses and dissemination. Patients bring unique perspectives and capabilities to research with their lived-experiences and connections to other patients. Our collective lived-experience throughout the global COVID-19 pandemic, and the risks that infectious agents can pose to pregnancy provide an opportunity to better engage patients in CMV research at this time. This session invites attendees to reflect on CMV patient engagement strategies through the lens of POR.
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Marcia Bruce (Co-Presenter), marcia.bruce@ucalgary.ca;
Marcia Bruce is a patient research partner and a busy mom of three. After being diagnosed with celiac disease, she became interested in health research and transforming patient experience, which inspired her to become a Patient and Community Engagement Researcher (PaCER) through the University of Calgary. Marcia is currently contributing to a number of research projects and initiatives with Alberta Health Services and the University of Calgary in the areas of digestive health, chronic pain, women's health and reproductive infectious diseases, including CMV.
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ASHA DISCLOSURE: Financial - No relevant financial relationship exists. Nonfinancial - No relevant nonfinancial relationship exists. |
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AAA DISCLOSURE: Financial - No relevant financial relationship exists. |
Eliana Castillo (Co-Presenter), castillo@ucalgary.ca;
Dr. Eliana Castillo is Clinical Associate Professor at the University of Calgary, where her medical and teaching practice focuses on medical disorders in pregnancy and maternal infections. She has been active in the area of immunization during pregnancy, congenital CMV infection and maternal mortality at a local and national level through her work with the Society of Obstetrics and Gyneacologists of Canada, Alberta Perinatal Health Program and National Advisory Committee for Immunization.
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ASHA DISCLOSURE: Financial - Nonfinancial - |
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AAA DISCLOSURE: Financial - Receives support from Pfizer for Speaker for review panel on vaccination in pregnancy. |