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8/23/2022  |   8:00 AM - 9:00 AM   |  Governor General I

Advocating for Change: Parent Experiences in Policy & Community Engagement

Parent-led advocacy groups continue to pave the way in driving public health and policy changes regarding CMV awareness, prevention education, and newborn screening protocols. This plenary features parents representing four region-specific CMV organizations. These organizations were founded by parents drawing from consequential, personal experiences in an effort to make a positive difference for future babies. These parents continue to identify system gaps, challenge status quo, forge connections, inform priorities, and inspire others. Each group has established credibility and gained momentum in moving CMV work forward, but not without unique barriers and challenges. Parents will share progress to date within their regions, empowering both parents and professionals to become advocates for CMV awareness and prevention.

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Khaliah Fleming (Primary Presenter), khaliah.fleming@nationalcmv.org;
Executive Director of National CMV Foundation. prof. background includes being results-driven certified health education specialist with international and national public health experience. With background in chronic disease management & prevention, health disparities, health equity & research partnership coordination, she managed & led multiple education& outreach public health programs, teams, & initiatives.

      ASHA DISCLOSURE:

Financial - No relevant financial relationship exists.

Nonfinancial - No relevant nonfinancial relationship exists.


      AAA DISCLOSURE:

Financial - No relevant financial relationship exists.




Rob Tetrault (Co-Presenter), rtetrault@cgf.com;
Founder CMV Canada Foundation

      ASHA DISCLOSURE:

Financial - No relevant financial relationship exists.

Nonfinancial - Has a Other relationship (President and Founder of the organization) relationship for Other volunteer activities.  


      AAA DISCLOSURE:

Financial - Receives support from Canadian CMV Foundation for President and Founder of the organization.