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8/23/2022  |   1:00 PM - 1:25 PM   |  Governor General II

Breaking Silos, Building Systems: Creating Collaboration around Congenital Cytomegalovirus and Newborn

Congenital cytomegalovirus (cCMV) has been nominated for review to be added to the Recommended Uniform Screening Panel (RUSP) and added to at least one state’s newborn screening (NBS) panel. However, many questions remain about the logistics of adding cCMV to NBS programs across the United States. In March 2022, Expecting Health began hosting quarterly meetings of the CONECT work group, a group specifically tasked with collaborating around the potential integration of cCMV into routine NBS, to ask and answer those hard questions. The group is comprised of members of varying expertise in newborn screening and CMV prevention including parents, healthcare providers, researchers, state program representatives, industry representatives, and advocacy and education organization representatives. In this presentation, we will highlight the discussion and work of the group to date, continuing the conversation with the larger community. Specifically, we will outline the what the group has identified as enablers and barriers to screening for cCMV through NBS, highlight areas for continued work and collaboration, and share what the work group sees as the next steps towards success.

  • Understand why collaboration is key to success in newborn screening and beyond.
  • Identify enablers and barriers to the integration of cCMV into public health newborn screening programs.
  • Learn key areas for continued strategizing and collaboration around cCMV and NBS.

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Session Evaluation

Natasha Bonhomme (POC-Point of Contact,Primary Presenter), nbonhomme@geneticalliance.org;
Natasha Bonhomme is the Founder of Expecting Health. She brings over a decade of nonprofit and maternal and child health experience to Expecting Health. She launched Expecting Health to bring a range of consumer and professional stakeholders together to address the need for clear, science-based information for families and individuals through tangible, actionable messages.


Financial - No relevant financial relationship exists.

Nonfinancial - No relevant nonfinancial relationship exists.


Financial - No relevant financial relationship exists.