Monday, Sept 26, 2016

8:00 am – 9:00 am

9:00 am – 10:15 am

  • Welcome and Plenary #1 (Phoenix Central)
  • Title: Changing the CMV landscape: The power of parent advocacy
  • Description: The power of parents in changing public health and policy and bringing attention to CMV. Share stories of advances made, including legislation, due to parent advocacy.
  • Presenters:
    • Kristen Spytek, National CMV Foundation (how non-profits help change the CMV landscape)
    • Farah Armstrong, Texas parent (working with state lawmakers to pass CMV legislation)
    • Erica Steadman, Illinois parent (leveraging stakeholders to pass CMV legislation)
    • Kathleen Muldoon, Arizona parent (parents as advocates in the care and early intervention services for their child)
    • Sara Doutre, Utah parent

10:30 am–11:30 am: Topical Breakout Session #1

Title of Abstract Presenter(s)
Congenital CMV Initiatives Across the United States: A Panel Discussion [PDF] Stephanie Browning McVicar; Ginger Mullin; Kirsten Coverstone
Prefecture-wide Activities for Prevention of and Early Intervention in Congenital CMV Infection in Nagasaki, Japan [PDF] Hiroyuki Moriuchi
Countermeasures against Congenital Toxoplasmosis and Cytomegalovirus Infection Led by the Research Team under the Supervision of the Ministry of Health, Labor and Welfare in Japan [PDF] Hiroyuki Moriuchi
Sensorineural Hearing Loss in Children with Asymptomatic Congenital Cytomegalovirus Infection Identified through Newborn Screening Followed for up to 18 Years - The Houston Congenital Cytomegalovirus Longitudinal Study [PDF] Gail Demmler-Harrison
Congenital Cytomegalovirus Disease Registry 1990-2015: Texas [PDF] Jerry Miller; Gail Demmler-Harrison
How to Incorporate CMV testing and treatment to the Hearing Impaired Child [PDF] Albert Park
Cost-effectiveness of universal and targeted newborn screening for congenital cytomegalovirus infection [PDF] Soren Gantt; Oran Goshen; Albert Park; Suresh Boppana; Karen Fowler
Parent Panel: CMV’s Family Impact Across the Life Spectrum
1) Corrinne’s Story [PDF]
2) Bobbi-Jo Asher: Spencer [PDF]
3) The Julien Family: Our CMV Journey [PDF]
Brittany Buchanan; Bobbi-Jo Asher, Christy Julien
Survey of CMV knowledge among occupational and physical therapists [PDF] Jodi Thomas; Kathleen Muldoon

1:00 pm – 2:00 pm

  • Plenary #2 (Phoenix Central)
  • Title: Marketing the CMV message: Proven public health techniques for raising awareness
  • Description: Presentation on proven techniques to raise awareness of other public health issues and change behaviors. Discuss application of those techniques to congenital CMV based on the best preventative messages we currently have.
  • Presenter: Mike Mackert

2:15 pm – 3:15 pm: Topical Breakout Session #2

Title of Abstract Presenter(s)
Congenital Cytomegalovirus Infection in Pregnancy and the Neonate: Consensus Recommendations for Diagnosis, Prevention and Therapy [PDF] William Rawlinson; Stuart Adler; Sheila Dollard; Karen Fowler; David Kimberlin
The World of CMV Vaccines [PDF] Stanley Plotkin
Public Opinion of Newborn Screening for Disorders with Various Treatment and Intervention Options [PDF] Megan Bunnell
Understanding the impact of vision loss when providing early intervention services to families of young children with cCMV [PDF] Mimi Pruniski
Deafblindness: What Teachers and Service Providers Should Know [PDF] Lucia Quinonez Sumner; Patty Dischinger; Ana Amiguet
Immune correlates of protection from congenital human cytomegalovirus infection following primary infection in pregnancy [PDF] Daniele Lilleri
Additive Protection against Congenital CMV Conferred by Combined gB/pp65 (GP83) Vaccination using a Non-Replicating Lymphocytic Choriomeningitis Virus (rLCMV) Vector [PDF] Mark Schleiss
No Such Thing as Resistance: Reframing Difficult Cases [PDF] Jessica Dallman
Preventing Burnout: Self-Care for the Well-Being of Providers [PDF] Jessica Dallman

3:30 pm – 4:45 pm

  • Plenary #3 (Phoenix Central)
  • Title: Is Universal Newborn CMV Screening Good Public Health Policy?
  • Description: Point-counterpoint discussion. Each participant will be given 4-5 questions in advance to prepare a one-minute answer. Following each prepared answer, one colleague may make a thirty-second response. The original presenter may respond for 30 sec. (10-15 minutes per question total, 4-5 questions, moderator: Alyson Ward)
  • Presenter:
    • Karen Fowler
    • David Kimberlin
    • Bill Rawlinson
    • Sheila Dollard
    • Albert Park